CF doesn't have to stop you from traveling to see the world or visit loved ones. With proper preparation and planning, taking care of your health while away from home may not be as hard as you think.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options. You can best manage advanced cystic fibrosis lung disease ACFLD when you know what to expect, what resources you can use, and the community of people with whom you can share your experiences. CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
These categories and complications include:. CF interferes with the normal functioning of your digestive system. These are a few of the most common digestive symptoms:. In addition to respiratory and digestive issues, CF can cause other complications in the body, including:.
In recent decades, the outlook for individuals diagnosed with CF has improved dramatically. Some can live even longer. Currently, treatment therapies for CF are focused on mitigating the signs and symptoms of the condition and the side effects of treatments.
Treatments also aim to prevent complications from the disease, such as bacterial infections. Even with the promising research currently underway, new treatments or cures for CF are still likely years away. New treatments require years of research and trials before governing agencies will allow hospitals and doctors to offer them to patients. If you have CF, know someone who has CF, or are just passionate about finding a cure for this disorder, getting involved in supporting research is quite easy.
Much of the research into potential CF cures is funded by organizations that work on behalf of people with CF and their families. Donating to them helps ensure the continued research for a cure. These organizations include:. If you have CF, you may be eligible to participate in a clinical trial.
Most of these clinical trials are conducted through research hospitals. You may work with a dietitian to develop a nutrition plan. In addition to receiving other usual childhood vaccines, people with cystic fibrosis should have the annual flu vaccine and any other vaccines their doctors recommend, such as the vaccine to prevent pneumonia.
CF doesn't affect the immune system, but children with CF are more likely to develop complications when they become sick. Regular exercise helps loosen mucus in your airways and strengthens your heart. Because people with cystic fibrosis are living longer, maintaining good cardiovascular fitness for a healthy life is important. Anything that gets you moving, including walking and biking, can help.
Don't smoke, and don't allow other people to smoke around you or your child. Secondhand smoke is harmful for everyone, but especially for people with cystic fibrosis, as is air pollution. Teach all the members of your family to wash their hands thoroughly before eating, after using the bathroom, when coming home from work or school, and after being around a person who is sick.
Hand-washing is the best way to protect against infection. If you or someone you love has cystic fibrosis, you may experience strong emotions such as depression, anxiety, anger or fear. These issues may be especially common in teens. These tips may help. Make an appointment with your doctor if you or your child has signs or symptoms common to cystic fibrosis. After the initial evaluation, you may be referred to a doctor trained in evaluating and treating CF. Here's some information to help you prepare for your appointment, as well as what to expect from your doctor.
After getting detailed information about the symptoms and your family's medical history, your doctor may order tests to help with diagnosis and plan treatment. Cystic fibrosis care at Mayo Clinic. Mayo Clinic does not endorse companies or products. Advertising revenue supports our not-for-profit mission. This content does not have an English version. This content does not have an Arabic version. Diagnosis To diagnose cystic fibrosis, doctors typically do a physical exam, review your symptoms and conduct several tests.
Newborn screening and diagnosis Every state in the U. Vest therapy Using a personalized approach, a Mayo Clinic respiratory therapist discusses inflatable vest therapy with an adult who has cystic fibrosis.
Request an Appointment at Mayo Clinic. Share on: Facebook Twitter. Show references Symdeko prescribing information. Vertex Pharmaceuticals Inc. Accessed July 1, Kalydeco prescribing information. Orkambi prescribing information. Chest physiotherapy compared to no chest physiotherapy for cystic fibrosis. Cochrane Database of Systematic Reviews. Cystic fibrosis. National Heart, Lung, and Blood Institute. Genetics Home Reference.
Mayo Clinic; Rafeeq MM, et al. Cystic fibrosis: Current therapeutic targets and future approaches.
0コメント